I follow Wheelchair Dancer. Alice's blog, and she always has something fascinating and accurate to say about the body, the body's tools, and how we place ourselves in language.
Likewise, at night, when my PEG tube is hooked up to a slow drip of liquid nutrition, there's a physical comfort to knowing my body is getting protein while I sleep. I could get the tube pulled if I wished, now. It's not absolutely required for my sustenance at this time. But it's a comforting back-up, that, along with a low cholestoral count and no concern about my gaining too much weight means that I'm curiously free of all concerns about my diet that most other women struggle with daily.It's an old post from 2006, but it was one of the first I ever read around disabled pleasure. I love how the very things that people choose to run from in advance health care directives are the things that give Kay pleasure. Her words ask me to consider how we talk about impairment without adding assessment and hence valuation. Her words ask me to look to my life and take in the things that I find pleasurable. And from pleasure, I move to community and to what I see as an essential element of belonging to each other: our responsibility to treat each other as we would like to be treated -- even if we don't know each other.